chris.watson Posted October 14, 2019 Share Posted October 14, 2019 2 hours ago, b_emmons said: Thank you, I hope so Good luck mate, my gaffer on the farm suffered like you for a few years, it wasn’t MS though, turned out to be Celiacs disease. Mind you, all the chemicals we have been handling for years probably has affected us all....sheep dip through to all the sprays. Often wondered if I would have death via Metasistox 1 1 Quote Link to comment Share on other sites More sharing options...
b_emmons Posted October 14, 2019 Share Posted October 14, 2019 1 hour ago, dm434 said: Ms is quite painful , I have two siblings with it , it is manageable but only with plenty of meds , good luck Brian 1 hour ago, chris.watson said: Good luck mate, my gaffer on the farm suffered like you for a few years, it wasn’t MS though, turned out to be Celiacs disease. Mind you, all the chemicals we have been handling for years probably has affected us all....sheep dip through to all the sprays. Often wondered if I would have death via Metasistox thank you guys my worst one is if they cant find a reason Quote Link to comment Share on other sites More sharing options...
Valley Axe Man Posted October 15, 2019 Share Posted October 15, 2019 Hope you get the answers your looking for Brian, it might be a long road to getting to the answer but at least your headed the right way, good luck 1 1 Quote Link to comment Share on other sites More sharing options...
jmd Posted October 15, 2019 Share Posted October 15, 2019 best of luck brian sorry to hear that 1 1 Quote Link to comment Share on other sites More sharing options...
justy 46 Posted October 15, 2019 Share Posted October 15, 2019 On 10/14/2019 at 4:08 PM, b_emmons said: Finally had a Doctor my Local GP practice actually listen to how I feel and how long it has been going on for, so finally after 8+ years of worsening fatigue, headaches, numbness and muscle cramps I am being referred for testing to see if I have MS and yes I am pleased to be sent even if it dose mean I might have MS, as at least I will know why I feel so bad some days Hope you get some answers Brian . Best off luck. 1 Quote Link to comment Share on other sites More sharing options...
b_emmons Posted October 15, 2019 Share Posted October 15, 2019 (edited) 20 minutes ago, justy 46 said: Hope you get some answers Brian . Best off luck. Thank you Edited October 15, 2019 by b_emmons Quote Link to comment Share on other sites More sharing options...
b_emmons Posted October 15, 2019 Share Posted October 15, 2019 1 hour ago, jmd said: best of luck brian sorry to hear that 18 hours ago, Valley Axe Man said: Hope you get the answers your looking for Brian, it might be a long road to getting to the answer but at least your headed the right way, good luck Thank you 2 Quote Link to comment Share on other sites More sharing options...
Kirely Posted October 15, 2019 Share Posted October 15, 2019 Not knowing cannot have been easy, hopefully you can turn the corner now. 1 Quote Link to comment Share on other sites More sharing options...
b_emmons Posted October 16, 2019 Share Posted October 16, 2019 On 10/15/2019 at 11:15 PM, Kirely said: Not knowing cannot have been easy, hopefully you can turn the corner now. Thank you, The not knowing is a killer, so any positive diagnoses will be a step forward and allow me to get some help 1 Quote Link to comment Share on other sites More sharing options...
Paul Palmer Posted October 17, 2019 Share Posted October 17, 2019 sorry to here this Brian,hope everything works out for you 1 Quote Link to comment Share on other sites More sharing options...
b_emmons Posted October 17, 2019 Share Posted October 17, 2019 34 minutes ago, Paul Palmer said: sorry to here this Brian,hope everything works out for you Thank you Paul Quote Link to comment Share on other sites More sharing options...
smithy Posted October 17, 2019 Share Posted October 17, 2019 On 10/14/2019 at 4:08 PM, b_emmons said: Finally had a Doctor my Local GP practice actually listen to how I feel and how long it has been going on for, so finally after 8+ years of worsening fatigue, headaches, numbness and muscle cramps I am being referred for testing to see if I have MS and yes I am pleased to be sent even if it dose mean I might have MS, as at least I will know why I feel so bad some days Hi Brian ,I was going to come and see you layout down at toytrak on sunday and say hello but I got busy helping Mr Reeve on his stand and the day just whizzed by ,anyway I was feeling like you say well over a year ago and drs just said you working to hard ,not drinking enough water etc ,cramps and tiredness got worse also had the numbness in arms and legs at times anyway about a week after I finished combining in August 2018 I went to get out of bed and I could not move my muscles was trembling and locking out like a cramp feeling it was agony could not see a Dr straight away as you have to make a appointment 2 weeks in advance(stupid system ) anyway I did see someone later that day my own dr was on leave so see a stand in one just said it would go away after a week but he is some steroids take 13mg a day with food and you will be ok after about 2hrs of taking first lot I was up and about with nothing wrong ,took tablets for the week and stopped a few days later it come back worse then before I was in my JCB loadall at the time and could not move to get out of it anyway the wife came up farm and found me helped me get out and straight down Drs ,my own Dr was back and see me straight away and said she thought I had P.M.R. which is POLYMYALGLA RHEAMATICE and the steroids was the correct treatment but was not supposed to just stop taking them like I had been told so she put me straight back on them for the next 6 weeks I was struggling to work my mate that had helped me on odd days before was up farm everyday doing my work as I was buggered anyway I slowly felt better and over the next few months I was up hospital at least twice a month for tests ,nothing else was showing up so they presumed it was PMR so carried on with steroids but slowly reducing the dose rate I have had other tests done since as the steroids have a few nasty side effects ,only on 5mg now and I now it is still there as arms ache at times and I feel rough some days ,MS was mentioned to me at the start but they are certain it is PMR with me had another test only on wedesday of this week and got another coming up in next couple of weeks as they do wont to get me off the steroids completely and on to something else I don't know what but probably be on something for the rest of my time ,anyway keep your head up they have all sorts of treatment these days and now they are listening to you I am sure they will sort you out , I am ok on my muscles at moment but don't have the strength like I used to and I do get tired ,but I am ok and I am sure you will be as well ,Smithy 5 1 Quote Link to comment Share on other sites More sharing options...
b_emmons Posted October 19, 2019 Share Posted October 19, 2019 (edited) On 10/18/2019 at 12:58 AM, smithy said: Hi Brian ,I was going to come and see you layout down at toytrak on sunday and say hello but I got busy helping Mr Reeve on his stand and the day just whizzed by ,anyway I was feeling like you say well over a year ago and drs just said you working to hard ,not drinking enough water etc ,cramps and tiredness got worse also had the numbness in arms and legs at times anyway about a week after I finished combining in August 2018 I went to get out of bed and I could not move my muscles was trembling and locking out like a cramp feeling it was agony could not see a Dr straight away as you have to make a appointment 2 weeks in advance(stupid system ) anyway I did see someone later that day my own dr was on leave so see a stand in one just said it would go away after a week but he is some steroids take 13mg a day with food and you will be ok after about 2hrs of taking first lot I was up and about with nothing wrong ,took tablets for the week and stopped a few days later it come back worse then before I was in my JCB loadall at the time and could not move to get out of it anyway the wife came up farm and found me helped me get out and straight down Drs ,my own Dr was back and see me straight away and said she thought I had P.M.R. which is POLYMYALGLA RHEAMATICE and the steroids was the correct treatment but was not supposed to just stop taking them like I had been told so she put me straight back on them for the next 6 weeks I was struggling to work my mate that had helped me on odd days before was up farm everyday doing my work as I was buggered anyway I slowly felt better and over the next few months I was up hospital at least twice a month for tests ,nothing else was showing up so they presumed it was PMR so carried on with steroids but slowly reducing the dose rate I have had other tests done since as the steroids have a few nasty side effects ,only on 5mg now and I now it is still there as arms ache at times and I feel rough some days ,MS was mentioned to me at the start but they are certain it is PMR with me had another test only on wedesday of this week and got another coming up in next couple of weeks as they do wont to get me off the steroids completely and on to something else I don't know what but probably be on something for the rest of my time ,anyway keep your head up they have all sorts of treatment these days and now they are listening to you I am sure they will sort you out , I am ok on my muscles at moment but don't have the strength like I used to and I do get tired ,but I am ok and I am sure you will be as well ,Smithy I am sorry to hear you are also having problems Smithy, so hope they can sort them out For me it is a great relief that they are finally taking notice and now trying to find out why I have gone from super fit, to barely able to fight a paper bag in less then 10 years, and I hope it is not MS I have but I have multiple problems on nearly all the symptom fields for testing, so just have to wait and see, and if I have then there are plenty of groups I can talk to and get help from, instead of the not knowing and getting worse that I have now As a side note steroids are a treatment for getting over the attacks of MS if you have the progressive form of it Edited October 19, 2019 by b_emmons 1 Quote Link to comment Share on other sites More sharing options...
Popular Post Tractorman810 Posted October 21, 2019 Popular Post Share Posted October 21, 2019 After 5 years of worry the wife has finally been discharged from the cancer clinic with the all clear 11 Quote Link to comment Share on other sites More sharing options...
robbo Posted October 21, 2019 Share Posted October 21, 2019 10 minutes ago, Tractorman810 said: After 5 years of worry the wife has finally been discharged from the cancer clinic with the all clear Brilliant news Sean, a weight off your mind I would think 1 Quote Link to comment Share on other sites More sharing options...
b_emmons Posted October 21, 2019 Share Posted October 21, 2019 8 hours ago, Tractorman810 said: After 5 years of worry the wife has finally been discharged from the cancer clinic with the all clear Great news Sean Quote Link to comment Share on other sites More sharing options...
1/32 farmer Posted October 21, 2019 Share Posted October 21, 2019 that's good to hear sean lookin good for the future mate Quote Link to comment Share on other sites More sharing options...
smithy Posted October 21, 2019 Share Posted October 21, 2019 Like all the above post Sean ,that's great news Quote Link to comment Share on other sites More sharing options...
Ferret90 Posted October 21, 2019 Share Posted October 21, 2019 Great news Sean Quote Link to comment Share on other sites More sharing options...
mb86 Posted October 21, 2019 Share Posted October 21, 2019 Fantastic news for you and your family Sean. Quote Link to comment Share on other sites More sharing options...
Tractorman810 Posted October 22, 2019 Share Posted October 22, 2019 Thanks all , yeah is a huge weight or our minds now ,even though its 5 years with all negative results , its always niggling at the back of your mind 4 Quote Link to comment Share on other sites More sharing options...
844john Posted October 22, 2019 Share Posted October 22, 2019 Yes, that's certainly good news Sean, we all moan about things in life but if you have your health then that's really the most important thing 1 Quote Link to comment Share on other sites More sharing options...
b_emmons Posted October 23, 2019 Share Posted October 23, 2019 and more good news my Hospital referral for MS testing has come through and I go on the 25th of November 5 Quote Link to comment Share on other sites More sharing options...
mb86 Posted October 24, 2019 Share Posted October 24, 2019 3 hours ago, b_emmons said: and more good news my Hospital referral for MS testing has come through and I go on the 25th of November Good luck Brian. I hope you get some answers that will help you manage your condition. 1 Quote Link to comment Share on other sites More sharing options...
b_emmons Posted October 26, 2019 Share Posted October 26, 2019 On 10/24/2019 at 2:54 AM, mb86 said: Good luck Brian. I hope you get some answers that will help you manage your condition. Thank you Quote Link to comment Share on other sites More sharing options...
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